This is My Declaration: I am Me

Earlier this week, I was shown an article by a friend and colleague of mine, Shaylynn, who writes at Misophonia International. She herself wrote it, and her article basically talks about how the press doesn’t portray misophonia the way it should be. She describes how they leave out how hard it is to get out of bed, and how “fabrics, aromas, and other stimuli can hit you in the face”.

Shaylynn also talks about an article she found–which I read as well–that attributed misophonia with suicide. She emphasized that “People should not feel hopeless, and they should not have to read media that attributes their suffering to only a bitter end.”

To read her full article, click here: People With Misophonia Aren’t All Suicidal

To read the article talking about misophonia and suicide, click here (Note: In no way do I expect everyone to have the exact same opinion about this article as I do. If you have other thoughts about this article, please don’t be afraid to voice them in the comments.): She could hear everything, and it cost her her life

I agree with Shaylynn one hundred percent. In my view, articles attributing misophonia with suicide paints those suffering with it as people who can’t function. It gives the condition even more stigma than it already has. “Chewing rage”, for example, is inaccurate. It’s more than that, but oftentimes the articles are written by people who don’t truly know the nature of misophonia, or who do know the nature, but then give it more stigma.

Misophonia may be very debilitating for me, but I can still function. I’m sure there are others reading this who can agree with me.

Let’s make a short list of things I can do:

  1. I can go out in society and run errands.
  2. I can go shopping.
  3. I can go to restaurants to eat.
  4. I can go to the movies.
  5. I can go to parties with loud music.
  6. I can go to college and pass my classes like any other dedicated student.

Provided I can have somewhere quiet to go to calm down if I start getting triggered, I can do things anyone else can do. However, the only difference is that there are days when I just can’t go out or do something because I either had a long day the day before, or I’m just not mentally prepared to deal with potential triggers.

Yes, there are days when I feel absolutely terrible for no other reason than “I got triggered and now my day is ruined”.

No, I don’t talk much because I’m trying to focus on what you’re saying instead of the trigger sounds that may be coming from you or other people around me.

Yes, there are days I don’t want to deal with anything at all, and just want to lie in bed all day because the world is so noisy, and the only safe place is my room.

So, suicide is the only option and the only way to end the torment of these sounds, right?

Wrong.

Misophonia is so hard to live with. I wouldn’t wish it on anyone. There are ways to cope with misophonia. Here are some of the ways I cope:

  • Wearing foam Earplugs
  • Wearing over-the-ear headphones. I downloaded a free app called A Soft Murmur, and you can play a combination of different sounds (rain, white noise, and waves to name a few)
  • Mimicking the sound
  • Leaving the room for a bit to calm down and then, if needed, go back (example, leaving class for a moment before going back in to face whatever sound was triggering me)
  • Telling close friends, and asking them to provide their support. The support I have from those I consider my close friends has gotten me through many situations where I could have been triggered, but I wasn’t. Just knowing I have their support is sometimes enough to keep me at ease and to keep me from getting triggered a lot (or at all)

I haven’t sought professional help, however, if you would like to, you can talk to either of the following professionals: Audiologists, Counselors or Psychologists, Psychiatrists, and Neurologists. Misophonia Treatment

Suicide is a very touchy subject for me, because I saved someone who had tried multiple times. I believe people don’t have to commit suicide to fix a problem they may be dealing with. Similarly, people who have misophonia do not have to resort to that, because there are ways to cope. I believe life is worth living, even with misophonia, and here’s why:

There are people out there who are willing to help you. I didn’t think this was true at first because my family didn’t think anything was wrong with me when I first exhibited signs of misophonia. Therefore, I thought I was going through some kind of rebellious phase. However, once I learned that what I had was real, and that it had a name, I told my family, and they have become one of my biggest supporters ever. I told my boyfriend, and he is another huge supporter. My best friend is yet another big supporter. I told everyone I knew, even those I didn’t know very well, and the right people eventually came along to support me. I asked for help and support, and it came. Honestly, if I never opened up about misophonia, I wouldn’t be the person I am now. Because of the people I’ve surrounded myself with, life with misophonia is not as bad as it could be. It’s hard to live with, but not as hard as it could be.

I understand the fear of telling people about misophonia. Trust me. It’s hard to explain when you have all these fears inside you about what the person’s reaction is going to be. Or, if you’re an introvert like me, you don’t like having to go out of your way to tell people–because that means social interaction–and probably can’t explain yourself very well. But telling people about it not only gets a better definition of misophonia out there (because it’s coming from you, someone who suffers with it), but it also means you will find people who will go out of their way to help you if you need it.

I suppose what I’m trying to say is that if you have people who support you, and you take that and tell yourself “I can do this. I can function”, then you will be okay. Stay positive. I’m not saying life will be easy and hand things to you on a silver platter after declaring that, but I suppose what I am saying is that their support will keep you going. And again, you must stay positive. That doesn’t mean you ignore the negative. It just means not letting those negative thoughts grow and destroy the positive.

I don’t have to end it all.

I can live.

I can fight.

See you next week. <3

Comments

  1. The link dies not work

    1. Thanks, I fixed it. Should work now.

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